The Adult Congenital Heart Association is a national organization providing education and support services for adults with congenital heart defects and their families. They are focused on the long-term needs of adults with congenital heart defects and providing education, outreach, and advocacy.

The American Heart Association offers information about the effects of and risks for congenital heart defects, as well as symptoms and treatment for children with congenital heart defects. This website also offers information about specific types of congenital heart defects.

The Brett Boyer Foundation raises awareness for congenital heart disease and fund research to advance treatment options. They focus on educating the need for research, the lifelong challenges and affects of CHD. They partner with organizations dedicated to inclusion, opportunities and celebration for people with Down Syndrome. They also provide ongoing support to patients, families and providers.

The Bright Heart Foundation was established to advocate for and support children and their families living with the challenges of congenital heart defects, while also providing support for the physicians who treat them. They provide support tools to doctors and nurses to use for their inpatient babies. They help to provide developmental support equipment to the inpatient and outpatient healthcare team in therapies. They provide mental health care to those living with CHD, their family members and healthcare providers.

Conquering CHD’s mission is to “Conquer Congenital Heart Disease.” They are accomplishing this through collaboration with patients, parents, providers, and partner organizations to improve quality and outcomes through CHD education, support, research, and awareness.

World Of Broken Hearts focuses on congenital heart defect awareness by showcasing their journey through photographs and storytelling. They give the gift of high-quality photographs and family portraits so the families can cherish for a lifetime.